We bring together and support families with children with Phelan-McDermid syndrome all over France and other francophone countries. Phelan-McDermid children and adults are our heroines and heros, they are courageous and despite all their symptoms, they bring hope. All together with all the families from the "Tehani et les enfants Phelan- McDermid" we contribute to advancing research on this syndrome, we support each other by raising public awareness and we help each other with a strong network. To discover more about our heroines and heros' journeys hover over their photos below to learn about their taste and passions.