top of page

Advocate for us

Programme de parrainage

Our association is fortunate to have two remarkable sponsors Tea Paraurahi and Teheiura Teahui. They go out of their way to meet their audience and take the time to talk about our association and what our Phelan-McDermid heroes fo through. Thank you for your support!

If you would like to speak, sing or bring awareness about our heroes with Phelan-McDermid syndrome at your events, please do not hesitate to contact us.

Advocate for us

Join our team and speak about us to help us raise awareness about  the Phelan-McDermid syndrome.


Our artist advocates

Join our wonderful team of artist advocates

22q13 Phelan McDermid France
22q13 Phelan McDermid France

Tea Paraurahi lives for Polynesian music. "TEA Child of the Pacific 987" is a singer, musician, singer, composer passionate about Polynesian culture.

Find Tea Paraurahi on youtube

Discover Tea Paraurahi in France Polynesia 1

In addition to this, you need to know more about it.

Discover Teheiura Teahui on France Polynesia 1

In addition to this, you need to know more about it.

Teheiura Teahui is a chef and is known for his participation in French television shows . Teheiura became known to the general public in 2011 during its participations in Koh-Lanta. He also participates in Fort Boyard, Ninja Warrior, and École Aventure. He is the author of two literary works "Culinary Adventure" published in 2014 and "Adventurer in the Soul" published in 2020 by the publisher Au vent des îles.

official site:

bottom of page