• Phelan-McDermid Foundation

If your child is diagnosed with PMS, it is important to register on the PMS database which lists the number of PMS cases around the world: HERE
You can enter details about your child in a secure database intended for research:
PMS patient registry

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• Practical sheets for PMS families

 

• Pastor Institute

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• GenIDA website

The GenIDA project launched by Jean-Louis Mandel aims to collect medical information on intellectual disability (ID) and / or autism spectrum disorders (ASD) with a diagnosed or identified genetic origin.

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• Facebook page and private group francophone families

 

• Functional ABA training

 

• Autism otherwise

 

• Hop'Toys solutions for exceptional children

 

• Beds suitable for exceptional children

 

• Help for families with children with disabilities or hospitalized ...

 

• Phelan-McDermid Syndrome Association of Spain

 

• Rare Diseases Alliance

 

• Orphanet

 

• PECS France

 

• Association Avenir Dyphasie - Makaton

 

• Autism France

 

• Having a different child